So, You Want to Build a Program?

This article will help dementia care service organizations develop and evaluate intervention programs in the absence of evidence-based solutions, which is key, given: the limited access family caregivers have to evidence-based intervention programs;and the need for organizations to use limited resources to develop and test new programs to serve families living with dementia. It draws upon two case studies of interventions developed at an academic-service center: KINDER and Ayudando a Quien Ayuda;evaluates lessons learned in assessing the two programs to refine them by applying the Exploration, Preparation, Implementation, Sustainment (EPIS) framework, and recommends ways organizations can refine interventions prior to efficacy-testing.

The Living Alone with Cognitive Impairment Project's Policy Advisory Group on Long-Term Services and Supports: Setting a Research Equity Agenda.

(1) Background: A United States national policy advisory group (PAG) was convened to identify barriers and facilitators to expand formal long-term services and support (LTSS) for people living alone with cognitive impairment (PLACI), with a focus on equitable access among diverse older adults. The PAG's insights will inform the research activities of the Living Alone with Cognitive Impairment Project, which is aimed at ensuring the equitable treatment of PLACI. (2) Methods: The PAG identified barriers and facilitators of providing effective and culturally relevant LTSS to PLACI via one-on-one meetings with researchers, followed by professionally facilitated discussions among themselves. (3) Results: The PAG identified three factors that were relevant to providing effective and culturally relevant LTSS to PLACI: (i) better characterization of PLACI, (ii) leveraging the diagnosis of cognitive impairment, and (iii) expanding and enhancing services. For each factor, the PAG identified barriers and facilitators, as well as directions for future research. (4) Conclusions: The barriers and facilitators the PAG identified inform an equity research agenda that will help inform policy change.